Mesothelioma Applied Research Foundation


Mesothelioma Applied Research Foundation

Description:

About Us and Our Work to Cure Mesothelioma

The Meso Foundation is the national organization dedicated to eradicating mesothelioma as a life-ending disease by:

  • funding the highest quality and most promising research projects from around the world through our rigorous peer-reviewed process;
  • helping patients connect with national mesothelioma experts and obtain the most up-to-date information on treatment options;
  • and advocating in Washington D.C. for federal mesothelioma research funding to stop this national tragedy.

The work of the Foundation is funded by mesothelioma patients and their families who have invested generously in the search for a cure, as well as law firms, drug companies, and companies formerly involved with asbestos, all of whom have joined in the common mission of curing the disease.

The Mesothelioma Applied Research Foundation is the nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma. We believe in a cure for meso. Given the human toll of suffering the disease causes, the compassion and energy of the meso community, the moral, legal and economic aspects of asbestos, and the benefits of meso research to cancer research generally, we believe that the resources to accomplish this cure are available and must be mobilized. We seek to marshal and utilize these resources responsibly, as effectively as possible and with financial transparency to:

  • Offer hope and support to patients and families by educating them on the disease, helping them to obtain the most up-to-date information on treatment options and to connect with meso treatment specialists, and providing them assistance, emotional support and community with others;
  • Fund the highest quality and most promising meso research projects from around the world through rigorous peer-review; and
  • Raise awareness of meso, and advocate that the public and private sectors partner in the effort to cure it by directing the resources needed to stop this global tragedy
Tags and Keywords: mesothelioma, research, disease, patients, foundation, national, treatment, families, resources, dedicated

Website: www.curemeso.org

Contact Email: info@curemeso.org

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You raise excellent qusotiens, Laura. Here's another: when a person has been diagnosed with Alzheimer's and there is no known cure, what do we do about their general health care? I just lost my mother to Alzheimer's (the complications arising from it). Until she went into hospice care she was on a host of drugs, including cholesterol-lowering meds and HRT (she'd had a hysterectomy 25 years earlier). Medicare (that's us) paid for these drugs for ten years. Her primary care physician apparently never questioned continuing these meds; she never had that conversation with my father. I wondered, what exactly were we saving Mom's heart for? What harm would hot flashes be at this point? I think at this stage of knowledge of the disease, we (including physicians) need to accept that keeping an Alzheimer's patient as comfortable (psychologically as well as physically) as possible is about all we should be doing just now. That is pretty challenging in itself. I wonder how much money is wasted on drugs that prolong an agonizing and terminal stage of a person's life as well as the costs of the person's life. Mom would have much rather seen those funds go to schools, libraries, or some other way to benefit society. But nobody gave her that option.

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